Duchenne MD – one of the most common and severe forms, it usually affects boys in early childhood; people with the condition will usually only live into their 20s or 30s.

How long can adults live with muscular dystrophy?

In its most common form, Limb-girdle muscular dystrophy causes progressive weakness that begins in the hips and moves to the shoulders, arms, and legs. Within 20 years, walking becomes difficult or impossible. Sufferers typically live to middle age to late adulthood.

What is the average lifespan of someone with DMD?

Median life expectancy without ventilatory support ranged between 14.4 and 27.0 years (pooled median: 19.0 years, 95% CI 18.0-20.9; weighted pooled median: 19.4 years, 18.2-20.1).

Is Duchenne muscular dystrophy painful?

Understanding Pain and Duchenne Many people living with Duchenne complain of pain. In a recent study of 55 patients ages 12-18 years old living with Duchenne or spinal muscular atrophy (SMA), 55% complained of mild/moderate, persistent or chronic pain1.

What race is Duchenne muscular dystrophy most common in?

It appears that DMD is significantly more common in white males than in males of other races.

Are people with muscular dystrophy in pain?

The findings indicate that pain is a more common problem in persons with FSHD than in persons with MMD, although it is common in both populations. In addition, these pain problems are chronic, underscoring the need to identify and provide effective pain treatments for patients with these neuromuscular diseases.